Listen to us talking live with Tina Daheley (40 minutes long) Please click on the following link to 1:12 mins, store please note there is a song in the middle of the interview so try and listen to it all. Read more
Smile with Shiv stood united with the UK Duchenne community in demanding the early availability and full funding of Translarna by NHS England. Translarna is potentially the first ever Duchenne drug to be approved Read more
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